Hey everyone...sorry it's been so long since we've updated, but we've just been feeding and growing here at the house. Yesterday morning little Miss decided to pull her own feeding tube out right before we went to see our cardiologist. It really worked out well for me because I was planning on discussing with Dr. Lemler if we could just pull her tube and see how she did without it anyway. So we left it out and went to the doctor. Lia checked out great. She's gaining weight - a big 7lbs 14oz. All her vital signs looked good, and they did another echocardiogram to visualize her heart. The echo looked really good...she has great heart function and her BT shunt (providing bloodflow to her lungs) is wide open and also looks good. We talked mostly about her feedings and decided to leave out her feeding tube for the weekend and see how she eats without it. I felt like it was really bothering her and making her uncomfortable. She wasn't too far off from taking her entire volume anyway so we felt like she deserved a shot to keep the tube out. So far so good...We have a scale here at the house and she gained a couple of ounces since we weighed her yesterday. We'll work hard to see if we can't round the corner here on her feedings.
I've added a few pics here to see how cute she is without her tube (she's cute with it, too). There are also some pictures here of her with her cousins Kade, Shelby, and Molly along with Colby and Jace.
I'll let you know how we do without the tube...keep praying.